Invisible Disabilities Week: Interview with a Spoonie – Jenny

1. Name

I’m Jenny, and I blog over at The Chronic Traveller!

2. Origin

I’m originally from the U.K. but I move around a lot. Right now, I’m living in Spain.

3. Tell us a little about you! What do you enjoy doing?

Hello! I love to travel. I especially like exploring historical sites all over the world. I’m really into birds so one of the things I love most about travelling the world is all the different birds (and other animals!) that I get to see.

I’m a huge reader. I think I spend about 60% of my time reading.

4. Tell us about your chronic illnesses! Anything undiagnosed or are you going through diagnosis right now!

I have Ulcerative Colitis. It’s a form of Irritable Bowel Disease. I’ve been diagnosed for about 2 years now.

I’m also currently being “investigated” for arthritis.

5. What would you say is the worst thing about chronic illness?

I suffer quite badly from fatigue so the worst thing is definitely not being able to participate as much as I would want to. I want to rush around doing all the things, and having adventures, but I can’t. It’s hard to sit back and rest when I want to be out doing things. It often feels like everyone is leaving me behind.

6. Are you a part of the spoonie community? Have you learnt anything from it?

I’m trying to be. I’m trying to connect with fellow spoonies on social media and through my blog. There are so many inspiring, and courageous people in the community. I admire it a lot.

7. What is your support system like? Do you have people around you who support and help you?

When I was diagnosed it felt like a lot of my friends vanished into the ether. It’s hard to know how to interact with someone who suddenly becomes ill out of no-where like I did. I understand that but it’s still difficult. Luckily I have one or two who have been real rocks for me, and my family is very supportive. I don’t live near my family though so I rely on friends a lot.

8. What is one achievement you have, that you thought you wouldn’t with chronic illness?

Travelling again, and moving to a different country. When I first got sick I was too ill to leave the house, but I’ve been gradually building my strength back up. I was worried that I would have trouble moving to another country. It’s something that I’ve done a lot in the past so I was upset to think that I’d have to stay in my home country forever. But this just wasn’t the case. Travelling and moving to a different country has it’s extra challenges, but it’s worth it.

9. Any spoonie specific social media you would like to share? Can people follow you there?

Yes! People can follow me on the following:

Read all Invisible Disabilities Week posts here!

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